Treatments/Intervention

 

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Treatment for men and women of all ages

Heart:

Because Marfan Syndrome (MFS) can cause many issues with various parts of the body, there are many interventions that a person with MFS may undergo. With this syndrome, valves of the heart that allow blood to flow properly are more likely to tear which will require surgery but could also lead to an aneurysm. There are also medicines called Beta Blockers, Calcium Channel Blockers, and ACE Inhibitors that slow the heart rate and cause the heart to beat with less force, which relieves the strain placed on the heart by the disease.

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Bones & Joints:

Another aspect of a person with MFS that will call for treatments are the long, thin bones with excessive flexibility at the joints. For these challenges, often times scoliosis (excessive curvature of the spine) can occur, in which the person will need to wear a brace to prevent the condition from getting worse; if the case is severe enough, surgery would be required. Surgery might also be required if the person’s chest is sunken in or sticking out in order to prevent the chest from pressing on the lungs and heart.

Eyes:

Eye problems are also very common in people with MFS (i.e. glaucoma and cataracts, which can cause blindness). Treatment for these issues include wearing contacts or glasses and potentially surgery to correct or help eye problems.

Children:

In some cases, some physical activity may not be safe or appropriate for children with MFS. Activities like weightlifting should be avoided, because they are too strenuous on the body and could cause injury or further heart problems. Some children with heart problems may be at a higher risk for illness or infection, so it is important to be aware of these potential illnesses and take the children to regular doctor visits and dental check-ups. [7]